Persisting Health Conditions
More Than Lyme Disease
We began as a group concerned about how U.S. medicine was handling Lyme disease, expecting changes through innovative, quality science. Soon, we realized that scientific research is but a small part of the picture. The predominant issue is lack of information and open discussion in many health care areas, not just those involving Lyme disease. A complex web of commercial, academic, and governmental agencies hinders open exchange of facts, ideas, and discussion that could improve the lives of many while reducing health care costs.
Focus
The Serano Group initially planned to be a disease advocacy group, hoping to improve efforts to ensure Lyme borreliosis received the attention and resources needed for development of sound policy. We soon decided that yet one more disease-focused group, competing with many of others for resources, was not the answer. Improving Lyme borreliosis medical care is not solvable as as isolated issue.
Potential
Fixing the many problems of U.S. health care is going to take time. The present and immediate neglect of Lyme borreliosis can be corrected much sooner. Disabled and impaired citizens could be returned to functioning lives. Health care expenditures could be greatly reduced by identifying the root cause of persisting health issues. In the process of improving diagnosis and treatment of Lyme borreliosis, a model for improving overall health care will result.
The Census
Our immediate priority is to count people who have been diagnosed and treated for persisting infections or syndromes and those having potentially treatable persisting health conditions. If you or anyone you know has had Lyme borreliosis, or if you think you might have Lyme borreliosis, we need you to be counted. We have created a controlled online survey that can be completed in about twenty minutes. You can pick the level of privacy you want—from complete anonymity to permission to disclose as appropriatel. Any and all information will be used solely for research, analysis, and education. You are invited to learn more or request an invitation to participate.
Each response is vitally important to improving the current Lyme borreliosis situations. The census survey is designed to accommodate everyone, whether they have Lyme borreliosis or not. It is especially important that those who have received treatment for borreliosis and improved to take the survey. We intend to publish results in the most visible and respected media possible. If traditional channels are hesitant or reluctant to publish, we are expert in publishing in alternative channels which might include online channels or outside standard medical journals.