These are best estimates of how many people in the U.S. are diagnosed with these conditions.
Lyme borreliosis is under-reported in these counts.
What if 10% were Lyme Borreliosis?
Treating doctors tell us that there are no definitive tests or symptoms that differentiate Lyme disease from the other conditions. For example, a multiple sclerosis case can look just like a Lyme disease case. The difference is there are fairly effective treatments for Lyme disease.
What If 20% were L. Borreliosis?
We spoke with Senator Ron Wyden (D - Oregon) who already knew a great deal about Lyme disease. He asked, "How many of you are there?"
More Than Lyme Disease
We began as a group concerned about how U.S. medicine was handling Lyme disease, expecting changes through innovative, quality science. Soon, we realized that scientific research is but a small part of the picture. The predominant issue is lack of information and open discussion in many health care areas, not just limited to Lyme disease. A complex web of commercial, academic, and governmental agencies controls open exchange of facts, ideas, and discussion that promotes overall health benefits. We soon decided that yet one more disease-focused group, competing with many of others for resources, was not the answer. Improving Lyme borreliosis medical care is not solvable as an isolated issue and our focus could not be solely on Oregon, Washington, or even the Pacific Northwest.
Fixing the problems of U.S. health care is going to take time. The present, immediate neglect and mismanagement of Lyme borreliosis is a correctable problem with potential for timely improvement. In the process of improving diagnosis and treatment of Lyme borreliosis, meaningful contributions will improvie overall health care.